Symptoms and History in Young Patients With Cardiac Arrest
Symptoms and History in Young Patients With Cardiac Arrest
Data were obtained through a retrospective, cross-sectional survey of members of Parent Heart Watch, a national organization of parents and families with a child who suffered SCA. Parent Heart Watch is dedicated to reducing SCA in the young through education, advocacy, and supporting programs targeting prevention. All member families of Parent Heart Watch at the time of this survey (n = 146) were recruited to participate in the study. The comprehensive questionnaire was based on national cardiovascular screening guidelines for young athletes undergoing a preparticipation evaluation. The survey was intended to identify warning symptoms before SCA; family history of cardiovascular disease; the timing of symptoms related to the most recent well-child evaluation, preparticipation evaluation, or physician visit; and the timing of symptom onset relative to SCA. The postmortem evaluation and diagnosis also were investigated.
The survey was distributed using the Catalyst WebQ online survey administration system available through the University of Washington. All member families of Parent Heart Watch were contacted via E-mail and invited to participate in the study. Each E-mail address was assigned a unique survey URL and participant ID number. A recruitment letter was distributed via E-mail and a reminder letter was sent once weekly for 3 weeks to families that did not respond. A paper copy of the survey was provided to participants without access to the Internet.
A similar study has not been performed with the member families of Parent Heart Watch, and the study findings have not been previously reported. This study was approved by the Human Subjects Division of the University of Washington and the Board of Directors of Parent Heart Watch.
Methods
Data were obtained through a retrospective, cross-sectional survey of members of Parent Heart Watch, a national organization of parents and families with a child who suffered SCA. Parent Heart Watch is dedicated to reducing SCA in the young through education, advocacy, and supporting programs targeting prevention. All member families of Parent Heart Watch at the time of this survey (n = 146) were recruited to participate in the study. The comprehensive questionnaire was based on national cardiovascular screening guidelines for young athletes undergoing a preparticipation evaluation. The survey was intended to identify warning symptoms before SCA; family history of cardiovascular disease; the timing of symptoms related to the most recent well-child evaluation, preparticipation evaluation, or physician visit; and the timing of symptom onset relative to SCA. The postmortem evaluation and diagnosis also were investigated.
The survey was distributed using the Catalyst WebQ online survey administration system available through the University of Washington. All member families of Parent Heart Watch were contacted via E-mail and invited to participate in the study. Each E-mail address was assigned a unique survey URL and participant ID number. A recruitment letter was distributed via E-mail and a reminder letter was sent once weekly for 3 weeks to families that did not respond. A paper copy of the survey was provided to participants without access to the Internet.
A similar study has not been performed with the member families of Parent Heart Watch, and the study findings have not been previously reported. This study was approved by the Human Subjects Division of the University of Washington and the Board of Directors of Parent Heart Watch.
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